Finally, after 3 years, I have caught an entire seizure on video from start to finish. This time, I felt it coming. It's what we call a "big" one because he screams and stops breathing...but in terms of length it's not "that" huge - just over 1 minute. Course that feels like an eternity to this mom.
This is Cody's favorite activity - we call it "Rockin' Robin!"
PECS
This is Cody beginning to learn "PECS" (picture exchange communication system.) This is a common alternative to verbal communication. He hands me a picture of what he wants! This video was taken on Oct. 22, 2007! Go Cody!
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Small Seizure
This is how Cody's infantile spasms looked initially when he was 6 months old. It's almost undetectable but when his left leg moves in, that's an individual seizure. For Cody, there were 60'ish individual seizures in a 5 minute cluster. Play Movie
This is a classic seizure for Cody during the 1st year after diagnosis. Each jerk to the left is an individual seizure. It's unusual for infantile spasms to be asymmetrical like this - meaning that he leans to the left. Cody had 10-15 of these clusters a day for 7 months, then grew out of them. Play Movie
In January 2006, Cody became seizure free for 3 months. After not smiling or laughing for many months, this was the little boy who emerged! We FINALLY got to hear our son laugh! Play Movie
On May 31st, 2005, when all his meds were removed, we saw our dear Cody walk for the very first time!!! A MIRACLE. We were told he'd probably never be able to walk. Play Movie
