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In late May of 2005, our dear little Cody was diagnosed with "infantile spasms" - a catastrophic epileptic syndrome that typically strikes babies between 4-7 months. He was given a 95% chance of retardation. He averaged 400 seizures a day for 8 months. Two days after Christmas of 2005, he became seizure free for 2 months. Now they're back and we are fighting to re-gain control. At almost 3 years of age, he is about an 8 month old cognitively and a 12 month old physically. This site is devoted to Cody and his heroic battle against this horrible syndrome. Will you join us in prayer for our little guy? He's the light of our lives and the most brave person we know. We live a chaotic, often desperate existence these days - but we know that if ANYONE can beat the odds, Cody CAN! Thanks for caring enough to come here and read this. We treasure the support, care and prayers of hundreds of people who stand shoulder to shoulder with us in this fight. We’d love to hear from you – click on “contact us” to send us an email.| May 6, 2008 |
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Okay I have a bit of advice needed. You all were great when I had breastfeeding problems. Now we have sleep problems. Sleep issues have plagued us our whole lives...but this one is specific to "wake up" times. Both boys wake up at about 5am. It is driving me nuts. It makes for SUCH a long day - especially when Cody doesn't go to school till 8:15. By then he's already burned out. Casey takes naps during the day, but it's just such an early wake up for a non-morning person like me. We've tried keeping them up later at night and it just doesn't help. Casey goes to bed at 8:30p and still gets up at 5am! We've tried putting Cody down at 10pm consistently and he STILL gets up at 5am. It is murdering me. Any thoughts on how to get kids to sleep later in the a.m.? I've covered both their windows to black out the room so the morning sun doesn't wake them. No help. I've tried depriving Casey of naps during the day so he's sleepier at night but he still pops up at 5am. I don't sense that it's hunger or wet diapers. They just seem to have body clocks for this time. HELP!!!! By the time we go to bed at night I feel like I've run a marathon!! Thanks, Shawna
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