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In late May of 2005, our dear little Cody was diagnosed with "infantile spasms" - a catastrophic epileptic syndrome that typically strikes babies between 4-7 months. He was given a 95% chance of retardation. He averaged 400 seizures a day for 8 months. Two days after Christmas of 2005, he became seizure free for 2 months. Now they're back and we are fighting to re-gain control. At almost 3 years of age, he is about an 8 month old cognitively and a 12 month old physically. This site is devoted to Cody and his heroic battle against this horrible syndrome. Will you join us in prayer for our little guy? He's the light of our lives and the most brave person we know. We live a chaotic, often desperate existence these days - but we know that if ANYONE can beat the odds, Cody CAN! Thanks for caring enough to come here and read this. We treasure the support, care and prayers of hundreds of people who stand shoulder to shoulder with us in this fight. We’d love to hear from you – click on “contact us” to send us an email.| May 14, 2008 |
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Here are a couple of photos I just got around to loading. These are the moms I had lunch with Saturday - Debbie on the left, Katie in the middle, Janae on the right, me on the bottom left and Michelle on the bottom right. Each with a child with infantile spasms. Each mustering a brave smile - and each one an amazing amazing mom. If you ever find time, would you consider praying for each of these women? We all need and covet your prayers. All 5 of us watch our babies have seizures every day - all 5 of us live at Dr's offices and hospitals - and all 5 of us are trying desperately to do what's right for our children. Next is Don at the end of his race with me and the boys - the finish line is right behind us. Go daddy!
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