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January 15, 2008 con't
| January 15, 2008 con't |
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Thank you for the emails, kind words & prayers. Cody is not a surgical candidate after all. Our neurologist said that after gathering more data and further study - he wouldn't recommend the surgery. He said we "could" do it, but it would be a fishing expedition - meaning we'd be fishing for some focal point that just isn't strong enough to merit the risks of surgery. Cody had about 20% of his seizures come from the right hippocampus. So if he had surgery it would only (at best) take away 20% of his seizures -- but the added statistic is that this surgery is only successful in reducing seizures 50% of the time. So...............the odds just got to be too slim. There were many answers to prayer over these past 2 days. 1) Cody had 40+ seizures which was a huge prayer request (more seizures = more accurate conclusions.) 2) We are being released tomorrow morning (wed.) which was my hope - to not have to stay the whole 6 days. 3) Cody was a total trooper and sailed through. 4) We love our neurologist - he spent an hour with us both yesterday and today and fielded every question, listened, advised...and truly cares about our son. 5) We got a definitive answer - it is clear that surgery would not provide enough relief to merit the risks. I have mixed emotions - relief that this EEG is over and we finally have an answer to our question. Sadness that the one chance we had for a miracle (other than God's intervention) has slipped through our fingers. Exhaustion at the thought that more medicine is the only tool we have left. And grateful that Cody has such a resiliant little spirit and really rises above his circumstances continually. Now we go on with the business of managing life with all these seizures - and a future that seems to hold more of the same. Trying to find the good...the abundance...the things to be grateful for in the midst of this daily fire. I recall my favorite quote - I posted it on my website the same week Cody was originally diagnosed 2.5 years ago: "With God as my captain....I laugh at the storm." I pray that as a family, we can find a quality of life that is managable. That we can find time to sleep. That life will be fun again. As a mother I pray - and will continue to pray - for the chance to hear Cody speak, sing, run, and be free from this prison of seizures. I am so tired - I'm going to go to bed. Thanks for checking in and for caring. We are so lucky to have you. Shawna |
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