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In late May of 2005, our dear little Cody was diagnosed with "infantile spasms" - a catastrophic epileptic syndrome that typically strikes babies between 4-7 months. He was given a 95% chance of retardation. He averaged 400 seizures a day for 8 months. Two days after Christmas of 2005, he became seizure free for 2 months. Now they're back and we are fighting to re-gain control. At almost 3 years of age, he is about an 8 month old cognitively and a 12 month old physically. This site is devoted to Cody and his heroic battle against this horrible syndrome. Will you join us in prayer for our little guy? He's the light of our lives and the most brave person we know. We live a chaotic, often desperate existence these days - but we know that if ANYONE can beat the odds, Cody CAN! Thanks for caring enough to come here and read this. We treasure the support, care and prayers of hundreds of people who stand shoulder to shoulder with us in this fight. We’d love to hear from you – click on “contact us” to send us an email.| April 27, 2008 |
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I cannot believe how much I take my internet for granted. I spent the better part of last week on the phone to verizon - trying to fix the fact that I could no longer get internet. It took 3 days of phone calls - hours and hours and hours on the phone with these techinicians. And ultimately it was discovered that the "main office" had missed some number by a digit - and my internet was gone for a week. ARGH!!! Lessons I learned - I can't be so reliant on the internet! I can't be so reliant on being able to email. The world will go on - even if my computer doesn't work. Good lessons. But oh was I hopping mad at these technicians! So, I'm back. Other than that glitch, it was an average week for us. Some big seizure days for Cody - other really good days for Cody. We all have colds (me, Casey and Cody) so that's no fun. I was up all night with Casey last night cuz he had a stuffy nose and it was freaking him out. In 9 months, this is his first cold - so I feel lucky there! Cody's cold brought on lots of seizures. That was no fun. Not much else to report...just hanging out. I can't breathe at the moment so I'm off to bed. Happy Monday to all! love, Shawna
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