Hello there and thank you to those who took time to pray for Cody.  After an entire week of (very literally) laying and looking like he was in a trance, Cody FINALLY showed some life today.  The day didn't look promising - he got out of bed at 7am and I fed him, then he walked right back into the bedroom and slept for 2.5 hours.  This has been typical all week.  On previous days, though, when he got out of bed he lasted about 5 minutes in the standing position and then immediately laid down and lay there with his eyes open all day.  Today however, he walked around with a smidge of a spring in his step.  Whew.  I am thrilled.  He still laid down a bunch, but at least he moved around the house for awhile first and even cracked a smile or two.  I think we are on the sloooowww road back.  It really is disheartening that as the months go by, each cold seems to require more and more time to rebound from.  That is typical for mito disease though.  It is still sad nonetheless.  He developed a really raspy cough the last couple of days which really had me worried it would go into pneumonia...but the cough is going away.  What a grueling time.  Now his poor therapist is out after having gotten this from him. 

So big scare for us, but today we have lots to be grateful for as he seems to be rebounding at this point.  The dr. told us that at these times (when he's been sick and isn't fully recovered yet) he is the most vulnerable to getting a new/different illness since his immune system isn't back to snuff.  So we are keeping him away from everyone and anyone and just hanging out in the house.  This can get tedious and I'm getting a bit of cabin fever.  I think poor Casey is too.

Tonight Casey and I were rocking before bed and he asked me about Buday.  Buday is a little boy from Nepal who we prayed for every night...who is now in Heaven.  He had the same illness as Cody.  Casey asked where Buday is and that sparked a conversation about Heaven.  It's hard to know how much to share with a 3 year old, you know?  I said something very basic and waited to see if he asked more questions.  Here's how it went:  'Heaven is where we go when we leave this Earth!  It's where Buday is, and your Grandpa...and it's where our whole family will be one day!'  He said, 'tell me more!'  So I continued:  'the streets are paved with gold...we'll be together forever...and when Cody gets to Heaven his body will be made perfect!  That means his brain will be perfect!   And we'll finally be able to hear him talk!"  Casey was fascinated by this.  He said Cody's first words will be 'I love you' and I agreed. 

I always smirk when I hear people who wonder why God allows people with severe special needs to even be born - when they just live a life of such misery.  It's true - we may not be able to see why on this side of the divide.  But I think we forget that even though they are what the world considers 'imperfect' on Earth....this is just the pit stop.  In Heaven, we get to spend all of Eternity with that person in their perfected form.  Cody's life here on earth may not seem like much to some ~ but I never for one day forget that this world is but a vapor and we have all of eternity to get to know Cody and live out life with him with no seizures, no pain, but with a body free from all the shackles it has here.

And that's what gets me through the day. 

Love to all,

Shawna