Hello there.  It's 10:30pm and Cody just fell asleep.  He made it through his morning surgeries well ~ although he had a rough day afterward battling the resulting pain.  He had an upper endoscopy, a 'flex' sygmoidoscopy, and a bunch of biopsies.  His feeding tube had blood coming up through the tube the rest of the day from the internal biopsies and he had horrible gas pain all day, poor little guy.  He woke up in recovery screaming like a wild animal and stayed that way for about an hour.  It's been crazy.  We got to the hospital at 7am and I feel like this has been the longest day. 

Now for the good news - the procedures showed no damage, no malformations, no structural defects.  Whew.  We (including the Dr) were worried that the disease was simply progressing and Cody was unable to use his intestinal muscles anymore.  That does not seem to be the case.  In fact the clease we did all weekend resulted in completely cleaned out intestines which means that he is, in fact, able to push waste thru them.  That is a really good thing.

Now the question remains ~ why all the pain?  We are being sent to the hospital urologist next as Cody also has problems peeing.  He wakes up in the morning with a completely dry diaper - which makes for up to 13 or 15 hours with no urinating.  So that's the next plumbing area to tackle.

So we focus on the good news that Cody's innards are in good working order.  Granted, he does have dysmotility, malabsorption, and delayed gastric emptying.  But we knew that going in.  We were looking for something 'new' to be wrong and didn't find it.

I pray for some sleep tonight because last night was terrible.  I'm exhausted so will sign off for now.

Love to all ~ Shawna