On day 2 of our 'Cody cleanse.'  So far, so good - and I won't go into detail.  :)   Suffice to say, things are 'moving'....and hopefully when we go in tomorrow for the appts. and tests we will get some more information.

The nights have been rough ~ but hopefully we're getting somewhere.  God bless Carolyn Klinich who high tailed it over here when we had to rush to the E.R. and who also came over today to help me with an enema while Don was gone.  Now THAT'S a true friend!  Haha.  I think we're on our 5th diaper change in an hour!  We are always stunned by how God has blessed us with these angels who help us through these difficult times.  Tomorrow it's Veronica and Ian.  As I often say 'with Cody...it takes a village!'

Don and I are just shaking our heads.  It was Memorial Day 5 years ago that Cody was diagnosed - and oh how much we've been through as a couple.  Somehow - some way - we do always manage to find a laugh here and there during these crisis times.  Usually it's due to sleep deprivation and stress - you just start making jokes to deflate the tension.  Today we sat by each other in church and the speaker mentioned that 'suffering is the road to spiritual wisdom' and Don whispered in my ear, 'then WE must be BRILLIANT!'  We got the giggles and just rolled our eyes at this crazy existence.

Secretly, I fear that this is how it's going to go...one set of organs after another will just stop working.  He's on a G-tube cuz he doesn't eat anymore ~ now he's not even able to have a bowel movement on his own.  What's next?  His heart?  His kidneys?   On the dark days, It seems like life is nothing but a marathon of walking this slow path as his disease progresses...a path that only goes one way....forward.  I guess that's what 'progressive' means, right?  It won't get better, it will get worse.  

Casey wore a new pair of tenna shoes and got big ugly blisters on his big toes recently.  They were all bloody and it was quite a drama for him (and for us as he freaked out about the blood and the pain.)  I kept telling him to watch his toes every day because it was an opportunity to see God's healing hand right before his eyes.  So every day we checked his toes and finally yesterday they were completely healed as if nothing had happened.  Fresh skin had replaced the torn up skin...the pain was gone...good as new.  I said, 'Casey!  look!  God healed your toes!  That's what He does!'  Casey was fascinated and looked up at me and said, 'maybe he'll heal Cody's brain like that!' 

I hid the tears in my eyes and said, 'well....let's pray for just that!'  So we bowed our heads and said a simple prayer that God would heal Cody's body once and for all and restore it completely (and Casey added, 'just like my toes.') 

So while the 'diagnosis' for his mitochondrial disease is 'progressive' - I am fully aware that God is the Great Physician and he does not operate within the boundaries and confines of modern medicine - or genetics - or diagnoses.  If He wants Cody restored completely, it will happen.  We believe in miracles and pray for Cody's miracle every single day.  And as I reminded Casey ~ God already answered our prayer if you think about it because when Cody goes on to his Reward and meets Jesus face to face ~ that restoration will be complete.  I finished by telling Casey, 'We may see God answer our prayer for Cody's miracle here on Earth and let's keep praying for it....but let's not forget that we already know the outcome for Cody....that in Heaven Cody WILL be healed....just like your toes!'

with love,  Shawna