| Nov. 22, 2009 |
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hi there, really tough seizure day, darn it. Cody just had a 2.5 minute one that seems to be his worst in a long time. He's passed out now, recovering. We went to church this morning but he seemed really fussy. And fussy all day really. If you know me, you know I'm wracking my brain for the 'why' of these bad seizure days. He's been on this new formula a week now - and there is no seizure improvement. So we have eliminated that option. I'm not sure whether to stick with the Vivonex TEN or go back to Neocate One plus. Right now he's having bowel movements with just a laxative - which is great for us. This may be TMI (too much information) but typically we have to do laxatives plus a liquid glycerin suppository every 2 days (which he HATES.) I'm not sure if it's the new formula that's helping him do this, or whether it's the added magnesium in the calcium supplement I'm giving him. But if it is the new formula that's making it easier to move food through his colon, we'll stick with it. I saw a FANTASTIC movie this weekend with my friend Mili - "Blind Side." It's a true story, super inspiring, and very wholesome! I *highly* recommend it. Well must run, dinnertime! With love, Shawna
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