We're FINALLY home at 10:30pm Sat. night.  I will write more tomorrow, but while Cody's resting I wanted to report that he's home safe and sound.  He threw up quite a volume of blood today which worried everyone.  Then he topped it off with a 7.5 minute seizure at the hospital.  And earlier today he had 20 seizure in two hours.

That to say, this it taking a giant toll and has lowered his seizure threshold a great deal.  By the end of the day, he had eaten a cup of applesauce and a few sips of juice and was keeping oral pain meds down, so we convinced them to let us take Cody home.  He wasn't quite as stable as they would have liked, but as I told them, we have the best chance of seizure control at home and that is the biggest threat.  He is in lots of pain - much more than I anticipated.  He literally screams if you touch him or try to move him.  The actual wound site is not bad at all - just a little tube poking out with gauze around it.  Cleaning it is impossible - he shreiks, rolls, kicks, flails, and bit Don so hard on the arm that we feared he had seriously removed a chunk of skin.  So I'm nervous about getting him through the next few days.  The pain is so bad that he seems not able to sleep.  We've tried morphine and codeine - doesn't seem to help a ton. 

We're exhausted - but so glad he's home.  He is such a trooper. 

So please send up some big time prayer for pain management, seizure control, and no more vomiting blood.

There is some really good news - he hasn't even tried to touch the wound site.  We feared he'd be trying to yank the tube out immediately but he doesn't even seem to understand where the pain is coming from.  Whew.

All for now,

Shawna