We just got back from Cody's 'weigh in' at the hospital.  We had 2 weeks to fatten him up - or he'd be put on a feeding tube.  So in the last 2 weeks, he gained 6 ounces.  Sheesh....I thought it would be so much more.  But that is 1/3 of a pound.  The good news is that he's on an 'upward trend' so we can keep on with our current regime - and put the feeding tube on hold as long as he continues to inch forward.  Boy - the last 2 weeks I have literally devoted all my energy to trying to get him to gain weight - so I can't imagine keeping up this level of intensity long term.  So more praying and more researching to try to find a supplement he can tolerate that will help him gain weight.  The benecalorie works - but it does give him bad gas overnight.  He is up every night at 2am for an hour - then gets up for the day at about 6:45am.  So not a lot of restful sleep for him.  Still, we choose to celebrate 6 ounces and dodging the bullet of a feeding tube for now. 

Course today he had 3 two-minute seizures and didn't eat all day because he spent most of the day recovering....so we'll see how this all unfolds as time goes by.

Casey had a hopping day - I bought him some stickers and unbeknownst to me, he found them!

with love, Shawna