| Jan. 25th, con't. |
 |
 |
 |
|
Hello there. Well we survived today. Seems like surviving the day is our new goal! Cody is finally asleep and I *pray* he stays that way. So you can see what he's facing, here is a video of him from the middle of the night. Last night, for example, he woke up at 1am, 3am and 5am doing this: Dim lights Embed Embed this video on your site It would break your heart to see him in person. We are basically living at Children's this week to try to get him some relief. Thank you, Mili and Dan, for your gift of friendship today! Mili brought over at least 4 meals - home made chicken pot pie, sloppy joes, meatloaf, and her amazing chicken dish with rice. Oh, and a pan of chocolate chip cookies! And Dan fixed our baby gate which was falling off the hinge - he fixed our laundry room door and garage doors that weren't closing anymore - and he fixed the babyproofing rubber on our stairs! You know how it is when you're simply putting out fires in life? It's those nagging projects that never get done. And it drives you crazy cuz they totally impact your daily living! Dan - thank you for showing up and helping. Our home fellowship blesses us so much - they don't wait for us to ask for help - they simply call and say "we're on our way." love in action. I search for the Lord on these days. On these nights. When Cody is screaming - then seizing - then screaming more - I can't imagine a loving Father who allows it. I am at a loss on days like this. I find no comfort in anything. I just want my son well. But I did make it to my grief group today - and was reminded that God loves me....loves Cody....even when I don't feel it. Days like these I believe that on faith - because my emotions don't feel anything but desperation. Days like these I turn to one of my favorite songs, "Yet I will Praise You": http://www.youtube.com/watch?v=CtTcKz_bM3A
I will praise You Lord my God with love, Shawna
|