Cody finally fell asleep around midnight last night after a long evening at the hospital.  And he nearly immediately began to have a seizure every 15 minutes through out the whole night.  I tried giving him more seizure meds but that didn't help.  So we finally gave him a rescue med (rectal valium) and he is finally sleeping.  We haven't slept in days - so we'd love prayer for sleep!  And mostly for Cody to sleep abundantely.  Overnight he didn't sleep for more than 15 minutes a stretch - because of seizures.  Poor thing.  He is such a trooper.  I'm glad that at least the valium knocks him out and he's finally sleeping soundly.  No sleep is murder on his mitochondrial issue. 

I'll keep this site updated with any new news.

Thanks so much,

shawna