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Dec. 16, 2008 PDF Print E-mail

What a crazy existence.  It's 2:30am.  It took 2 hours just to get Cody to fall asleep by 10:30pm - two hours of swinging, vibrating pillows, more swinging, taking him into bed, getting up from bed, more swinging and him finally having a seizure that knocked him out at 10:30.  Only to have him wake up again at 2am from 6 seizures in a row.  Time to start all over again with the pillows, swinging, etc etc etc.  It is so crazy making.  About once or twice a week he has these nights where he'll just have seizures all night.  We'll be up all night.  And no amount of drugs or sleep aids changes anything.  Sleep - our greatest battle.  We have to go to Children's tomorrow for yet another appt. and we have to go whether Cody is exhausted or not. 

Please pray for one thing for us right now - sleep.  Consistent sleep.  Mostly for Cody, then for us.

Thank you so much.

Shawna 

 

 
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