It's 1:30am.  Cody's still up.  Sometimes I literally feel like I'm going to go crazy.  I am so tired.  He has an important appt. at Children's tomorrow that we need to leave for at 8:15am.  It's with his gastro Dr. because his tummy problems have been out of control.  And he won't go to sleep.  I even tried benedryl - his Dr. said that was okay to use to help him sleep on tough nights.  It didn't do a thing.  He's had about 30 seizures today....5 in the last half hour.  Please don't email me that we should try melatonin - or chammomile tea to help him sleep.  We're so beyond melatonin and tea.  I've tried every sleep help and drug known to man.  Nothing puts him to sleep. 

 I have 3 therapists lined up to work with him tomorrow - all will have to be cancelled because he will be exhausted, fussy, and having too many seizures.  It's an endless cycle.  And the really sad part is - this is a typical day.