Cody is doing much better - hasn't had even a small seizure since 7:30am yesterday.  Whew.  But this tends to happen this week - he'll be great for 2 days, then crash.  I felt like I the meds would never end this morning now that we added clobazam and topomax for a bit.  The only thing I notice side-effect wise (so far) is he's a bit wobblier.  We'll see how this new drug cocktail works.  It's short term so that's nice. 

He's back in school today which is nice for both of us!  He had 4 days off because of school conferences last week and I kept him home tues.  So this is his first day back in 8 days.  For 8 days straight he was home - with me - nonstop.  Yikes.  I'm glad I survived.  It's nice to have some down-time and to be able to spend some quality time with Casey. 

Shockingly, even yesterday after being in the ER all morning and after getting extra drugged up, he did great in home ABA therapy!  That kid is a wonder.  He somehow manages to break through the haze of seizures and meds - and perform!!  He SO wants to learn and communicate - it is amazing to see his little spirit rise out of the ashes of a day like yesterday. 

I got this touching email from one of Don's good friends from Vancouver today.  What a wonderful thought.  Thank you to our friends who keep track of us and lift us in prayer.  We love you all.

Don and Shawna, Cody and Casey,
Calvary greetings and love to you. May the Lord encourage you with Horatio G. Spafford's hymn, it is well with my soul, today as you endure these very hard times with Cody.
I couldn't help weeping for Cody as I read yesterday's update. I feel sorry for the both of you and I've prayed for you to rest assured that the Lord, He is in control and that He's will give you the ability to weather these vicissitudes of life.
Don, may it be well with your soul
Shawna, may it be well with your soul
Casey, may it be well with your soul

Cody Graves, may it be well with your mind, body, soul and spirit. I love you buddy and am crying to our father on your behalf.
Maybe one day we'll all understand, maybe not, either way, may it be well with our souls.
I love you all
Ngugi

That's it for now,

love to all!

shawna