Well just as I entered the last post on finding the abundance in life - I got struck between the eyes with the opposite!  I've been up since 3am - so has Don.  Cody began seizing at 5:30am and by 7:30am had about 15 seizures.  Diastat wasn't stopping them so we called 9-1-1 and off we went to Children's.  What a drama.  What a nightmare.  I seriously thought Cody's seizures would just continue on top of each other without break - which is when things get really scary.  Luckily with a 2nd round of Diastat at a higher dose, he stopped having seizure clusters.  We were there all morning - got lots of time to talk with the neurologist - who put him on more clobazam and started him on topamax.  So get this - today Cody was given trileptol, lamictal, clobazam, diastat, and topamax.  All in a 3 year old's little body.  I tear up as I write that.  All adult drugs.  All at adult doses.  He's never been on topamax - I hear it's awful.  People call it "dope-a-max."  The intent is just to try to bridge him through this spell of bad seizures this week.  He's okay now - just kind of loopy. 

I have no idea what's causing this seizure spike this week.  He's not sick.  Nothing's changed.  All we can do is pray, pray, and pray some more. 

love,

Shawna