Hi there - I wrote a blog recently and hit "save" and lost the whole thing.  Grrrrr.  Sorry bout that.  Now it's 9:30 and I'm tired so I'm going to keep it short.

We've had to give Cody diastat twice in the last 5 days and every other day we've had to give him valium orally.  Bad seizure week.  Please pray for him.  He's up all night every night because the valium keeps him wide awake.  Yet there's really no other alternative.  So we're exhausted, he's exhausted.  Our overnight respite person was here 3 nights while Don was out of town but when Cody's up, the whole house is up so it's hard to escape. 

That's really all I have to say today - our lives revolved around seizures all week and weekend.  I grow so weary of hearing that all-too-familiar "aaaarrrrrrrrggghhhhhh" that he screams out when one begins.  Some days feel really heavy.  Thanks for your thoughts and prayers.

With Love,

shawna